Official response of three Hubei children with malignant tumor who failed to report to Beijing for treatment

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 Official response of three Hubei children with malignant tumor who failed to report to Beijing for treatment


Among the three children, some had been hospitalized for 4 years and had 17 operations, and now only one hospital in Beijing is willing to accept them; some had poor chemotherapy effect, and the tumor area continued to expand; others had delayed the original time of stem cell transplantation, which may be life-threatening. According to the family members, they have contacted doctors in Beijing hospital and can be admitted to the hospital as long as they arrive in Beijing for isolation for 14 days.

On the evening of March 24, workers from Hubei Provincial Office in Beijing told Red Star news that they had received the relevant information that three cancer patients urgently need to go to Beijing for treatment. At present, they are trying to coordinate and deal with this matter as much as possible. According to the latest policy, from 0 oclock on March 25, Beijing people from areas outside Wuhan, Hubei Province, can apply online and return to Beijing by point-to-point transportation, it is recommended to try to apply, but no specific implementation rules have been received, so it is uncertain whether they can pass.

The operation time of three children with tumor of Hubei nationality delayed again and again

Xiaohu, 5, lives in a small village in Yicheng, Hubei Province. He was diagnosed with hepatoblastoma in his first year. Since then, my father took Xiao Hu to Shanghai, Beijing and other places to seek medical treatment. He has done 17 operations, large and small, and spent more than 4.6 million yuan in four years on treatment fees. Some of the money is earned by live broadcasting, some is raised by charitable foundations or other channels, and relatives and friends have borrowed it all, and now he is in debt of more than 800000 yuan. Said Xiao Hus father.

In the past 4 years, Xiao Hu has had 17 operations

In 2019, Xiao Hu checked in Bayi childrens Hospital of Beijing Army General Hospital and found that cancer cells not only transferred to the kidney, but also to the lungs, pleura and septum muscles. So in April, he underwent right kidney resection, followed by chemotherapy for up to six months. On November 20, 2019, two months after treatment, reexamination was informed that the tumor relapsed again.

At that time, the target drug was no longer effective. AFP increased from 400 to 3000 + within one month, and the tumor developed to an uncontrollable level. Xiao Hus father said that after the relapse, he rushed to Beijing immediately. One hospital asked for the treatment plan next to another, but no hospital was willing to receive it. They said there was no hope, let me not toss. At last, the director of general surgery section of a general hospital in Beijing said that surgery could be carried out, but the risk was high, which was also the last hope for Xiao Hus father.

Because the operation cost is not enough, Xiao Hus father decided to raise money first, and then went to Beijing for operation after the Lantern Festival. However, due to the impact of the epidemic, the travel time was delayed again and again. At present, more than 73000 yuan has been raised, but I didnt expect that the epidemic will last for such a long time. The child now has severe pain, his legs have been deformed and cant walk, and the operation time cant be delayed any more.

Like Xiao Hu, Xiao Liu in Shiyan City, Hubei Province, was diagnosed with hepatoblastoma. In 2010, 5-year-old Liu went to a hospital in Beijing for surgery with the help of a kind-hearted group of hepatoblastoma patients after no obvious effect in a hospital in Wuhan. After six courses of treatment, he recovered and went home.

On the evening of January 26, 2020, Xiao Lius mother found an egg sized bag in her abdomen. The next day, she immediately went to the local hospital for examination. The examination result showed that AFP exceeded 1210, confirmed the recurrence of the tumor and metastasis in the lung. Shes much worse now than she was ten years ago, but we cant cure her locally, and Beijing cant go.

The disease certificate of Xiao Liu

Professor Li, a pediatric surgeon at a hospital in Beijing, asked the child to go to Beijing immediately for treatment. But affected by the epidemic, Xiao Liu has been unable to go to Beijing, so Beijing Tongren Hospital issued a chemotherapy program in the local hospital for chemotherapy, which is not a long-term solution.

Chemotherapy alone is not effective. The tumors in children are developing rapidly, and there are few places in the liver that are good. Xiao Lius mother also said that repeated chemotherapy before surgery will also cause the child to be weak, and the child may not be able to withstand the intensity of the operation and endanger his life, so he must go to Beijing for surgery as soon as possible.

Also eager to go to Beijing for treatment, there is a 7-year-old child, Xiao Chen, who was diagnosed with neuroblastoma in 2018. On July 4 of the same year, he was operated in a hospital in Shiyan City. At that time, the doctor said that the cure rate was only 40%, but we still want to treat the child. After the operation, we received chemotherapy eight times. Said Xiao Chens mother.

Before leaving the hospital, Xiao Chen had a test, but found that the cancer cells spread. Its the end of the cancer, so we have to do surgery. In April 2019, Xiao Chens mother took him to Beijing for medical treatment, and performed the second operation at the Capital Institute of Pediatrics. After leaving hospital on April 22, Xiao Chen received chemotherapy in Beijing Tongren Hospital, and 22 times before and after chemotherapy.

Fortunately, in September 2019, doctors in Beijing Tongren Hospital said that Xiao Chen was getting better. We should collect stem cells as soon as possible, and then carry out stem cell suppression surgery after the disease is completely controlled. Xiao Chens mother contacted Beijings Kyoto childrens Hospital and planned to go to the hospital for stem cell transplantation on January 31 this year, but was unable to move forward because of the epidemic.

From village to province contact to Beijing coordinate, report at home and other responses

It was almost two months since he was scheduled to go to Beijing. Xiao Chens body began to weaken. On March 4, he began to have a fever and bleeding spots. Seeing his fever, he became confused. Based on his two years of medical experience, I know that the number of cells in his child decreased. I immediately gave him a white needle to stimulate cell generation and increase immunity. That night, Xiao Chens mother didnt dare to close her eyes. She stayed up until dawn and called the village to ask for treatment in the county.

At that time, it was not unsealed. A village set up a card, but in case of an emergency, the travel certificate has not come down yet. We will call the county government at every point. After arriving at the county town, Xiao Chens mother carried him around for medical treatment. She went to the county hospital first, but because there were infected people in the hospital, she was unable to treat other patients temporarily. She also replied that she could not treat them when she arrived at the hospital of traditional Chinese Medicine. That night, she rushed to the city hospital.

At that time, the platelet dropped to 0.3. The doctor said it was similar to that there was no platelet in the body, but there were too few platelets, so the bleeding in the body could not stop. There was no blood stock in the hospital, so Xiao Chens mother decided to donate blood and transfer the platelets in the body to Xiao Chens body. Later, with the spread of volunteers, some good Samaritans came to donate blood. Finally, Xiao Chen transfused two units of platelets, gradually improved, and left hospital on March 10.

Young Chen on the sickbed

It is understood that Xiaochen has spent more than 900000 yuan on treatment and owed more than 500000 yuan in foreign debt. If the stem cell transplantation is successful, at least 300000 yuan needs to be prepared. At present, Xiaochens mother has opened online crowdfunding. As of the press release, less than 10000 yuan has been raised.

Xiao Chen is now at home, not eating very much, mentally poor, sometimes leg pain. But Xiao Chens mother worried: the tumor cant be seen and touched, and it may get worse at any time. When symptoms appear, it means that he has bleeding in his body. If its cerebral hemorrhage next time, no one can save him. As a result, Xiao Chens mother began to report to the local village, county and city governments and applied to go to Beijing for stem cell transplantation. The leaders and village secretaries in the county said that they cant enter Beijing now, and the relevant policies havent come down yet. I also gave the mayors hotline of Beijing a report, and asked me to find the local government to coordinate over there.

Doctors at Kyoto childrens Hospital in Beijing told Red Star news that Xiao Chen came to Beijing through regular channels, and after he was released from isolation according to relevant regulations, the hospital could treat him. If he cant come, he can only have chemotherapy in the local hospital, but Im afraid that ordinary chemotherapy cant control his condition. He was going to do stem cell transplantation in the next year, which is quite the case Field chemotherapy, the collection of stem cells before the recovery of the body, is undoubtedly the sooner he does the better

In order to cure the disease as soon as possible, Xiao Hus father also contacted the local mayors hotline, and also posted online for help. Finally, after the local village committee came to know the situation, he replied on March 23 that he was reflecting on it.

In recent days, Xiao Lius mother and father have also sorted out the relevant cases and transfer certificates, and are waiting for the news from the village committee. The village is helping to contact and report, saying that it is tomorrow to reply whether it can go to Beijing.

Xiao Lius mother said frankly that she was very depressed during this period. During the new year, she was basically in the hospital. In addition to worrying about Xiao Lius treatment, she was also taking care of her father, who was also ill. Unfortunately, his father died before, I feel very powerless and dont want the tragedy to happen again. Now I just hope to go to Beijing as soon as possible to treat my child.

Hubei Provincial Office in Beijing: under coordination

Why do we have to go to the hospital in Beijing? Xiaochens mother said that the collected stem cells were stored in Kyoto childrens hospital. If he went to another hospital to collect them again, his body would not be able to bear it. It was also collected for three days, which consumed him a lot. If stem cells are transported to hospitals outside Beijing, is it feasible to transplant them? Doctors have also told her that such a risk is very high, road transport easy to destroy cells.

Lius and Hus parents believe that tumor surgery is very difficult, and few hospitals are willing to receive treatment. Moreover, the previous surgery was also done in Beijing, and the children were also effectively treated.

However, they are not the only three families facing the same difficulties. A volunteer who participated in the relay told Red Star news that in addition to the three children, one of them had given up the plan of going to Beijing for treatment and went to Shanghai on the 23rd. In addition, according to her current contact cases, there are 7 children who need to go to other places urgently, mainly involving retinoblastoma, hepatoblastoma, neuroblastoma and other diseases.

(function() {(window. Slotbydup = window. Slotbydup| []). Push ({ID: u5811557, container: ssp_, async: true});)) (); in this regard, the staff of Hubei Provincial Office in Beijing told Red Star news that they had received the three tumor patients urgently need to go to Beijing for treatment reported by volunteers. At present, they are trying to find a way to coordinate relevant departments to deal with this matter. According to the latest policy, from 0:00 on March 25, Beijing people outside Wuhan, Hubei Province can apply online, and then return to Beijing by point-to-point transportation. After arriving in Beijing, they will be isolated at home for 14 days according to the specific requirements of the community. It is suggested to try to apply, fill in the information of children and peers, but the details are detailed It has not been issued yet. Whether it can be passed is not certain. The staff said. ID card, residential address... Xiao Hus father opened the application procedure and started to declare according to the steps. He said that whether he could pass or not, he would try for the sake of children. Extended reading of Hubei Province: on March 27, all channel card points except Wuhan were removed. The first batch of more than 800 people detained in Hubei Province returned to Beijing today. The whole process of closed-loop management will be resumed in Hubei except Wuhan. International and Beijing round-trip flights are not included. Source: Red Star News editor: Yu changzong u00b7 nbj11145

In response, the staff of Hubei Provincial Office in Beijing told red star that they had received the relevant information from volunteers about three cancer patients in urgent need of treatment in Beijing. At present, they are trying to find a way to coordinate relevant departments to deal with this matter as much as possible.

According to the latest policy, from 0:00 on March 25, Beijing people outside Wuhan, Hubei Province can apply online, and then return to Beijing by point-to-point transportation. After arriving in Beijing, they will be isolated at home for 14 days according to the specific requirements of the community. It is suggested to try to apply, fill in the information of children and peers, but the details are detailed It has not been issued yet. Whether it can be passed is not certain. The staff said.

ID card, residential address... Xiao Hus father opened the application procedure and started to declare according to the steps. He said that whether he could pass or not, he would try for the sake of children.